So I'm going to be a dad
“So guess what? I’m not the only one in this couple with a
mysterious growth inside me!”
That’s how I considered telling my parents and
parents-in-law that we were expecting a child at the same time I was battling
cancer. But that’s not how it happened.
Instead I was lying in my hospital bed with my wife Melanie
holding my hand. I was still groggy as I recovered from a biopsy and had a
great big tube coming out my side to drain my chest. Days earlier a mysterious
lump had been found in my upper chest, and while we waited to find out what it
was we all feared the worst.
It happened to be my birthday and I was happily receiving
gifts from the people gathered around the bed. It came time for Melanie to give
me a present, and she handed me one that she’d very carefully selected – a
book, “So
You’re Going to Be a Dad”.
I enthusiastically unwrapped it and held it up for my
parents and parents-in-law to see. As I began to utter the magical words waves
of emotion lashed the shores of my mind. “It’s been a pretty eventful few
days,” I said, my voice rising an octave. “Well, Melanie and I have some more
news for you. We’re going to have…” My sobs overwhelmed the end of the
sentence.
After some frantic pointing at the book and at Melanie’s
belly the meaning of my curtailed revelation was clear. With infectiousness
suitable for a hospital, we all quickly teared up and exchanged hugs. Even my
father, not known for public displays of emotion at places other than the
Southern Stand of the MCG, was soon in need of a box of tissues.
Melanie and I knew we were expecting a baby since before my
health troubles emerged in mid-October but told few people until the first
anniversary of our wedding on Monday. It’s a relief to finally share the
information, meaning we no longer need to keep a big secret amid all the
tumult.
So what does it mean to have a pregnancy and a cancer battle
going on in the one household at the same time?
For starters, we’ve got to be careful. When you take chemo
drugs, and for a week after, the patient is cytotoxic, meaning their secretions
are poisonous (literally “toxic to cells”). Most other people have robust
enough immune systems to cope with small amounts of cytotoxic exposure, and the
only concern is significant spills of bodily fluid. But for a developing
foetus, cytotoxicity can do damage to development, particularly during the
first trimester. (I started chemotherapy when Mel was 11 weeks pregnant.)
After speaking to several doctors on the oncology and
obstetrics sides, we decided to take a very cautious approach.
One recurring piece of advice was to use separate toilets –
but our modest one-bedroom home has just one. To the rescue came Mel’s dad
Keith, a fine father-in-law and an excellent home handyman. He quickly
formulated a plan to construct a temporary dunny on our veranda. Within days
he’d got the materials he needed at Bunnings and set to work. Before long we
had a thunderbox to be proud of, fully flushing, walled in on all sides, and
decorated with a tasteful landscape scene on the door. Our toilet problem had
been solved.
Then there are all the other ways two people might
incidentally pollute each other. The night sweats that had become common for me
meant we opted for separate beds, with me sleeping in the living room. The
shower was another potential hot spot, so Mel agreed to use other facilities available
to her. We invested in a set of cutlery and crockery, with a distinctive
design, so that we could each have our own utensils.
Six weeks after we started, it seems to be working pretty
well. We’ve got into a happy rhythm at home and we know what we can and can’t
do. For about one week in three, when the chemo drugs are flushed out of my
system, things get back to normal, and for the rest of the time we just get on
with it.
There’s not a lot of research about people in our
circumstances. It is hard to know the exact risk posed to a foetus from exposure
to cytotoxic chemicals, because it doesn’t happen very often. But the downside
of being too cavalier seems far greater than the downside of being too
cautious, so we are being careful. I would hate to be haunted by thoughts of
“if only” if something unexpected were to happen. Still, some recent
research showed that women who were diagnosed with breast cancer while they
were pregnant could still receive chemotherapy beyond the first trimester
without harming the foetus, giving us greater confidence.
My chemo and Mel’s pregnancy has had some similar effects on
our bodies. Both of us are frequently and profoundly tired. Some days in the
past few weeks when we get home it’s been a race to see who gets the couch and
who gets the bed for a good lie down. The hard work each of our bodies is doing
in response to the new arrival is sapping our energy and leaving little room
for discretionary effort. We are also frequent visitors to the loo as our
bladders struggle with the extra pressure – lucky we’ve got two (toilets that
is, but it also applies to bladders).
Then there are the dietary changes. Both a foetus and a
cancer patient during the neutropenic phase have a weak immune system and so
are unable to fight off things that are innocuous for most others. So soft
cheeses are out, as are unpeeled fruit, raw eggs, cold meats, some seafood and
unwashed salads. Having the two of us both face the same restrictions on diet
does make shopping and cooking a whole lot easier, although the things we do
end up preparing are unlikely to land us a spot on MasterChef. (Though a MasterChef Preggers and Cancer special would be worth watching.)
Perhaps the toughest part is that neither of us are equipped
to play the caring role we wish we could play. The advice for pregnant women is
to seek support from their partners, and cancer patients get told a similar
thing. Put the two of us together, though, and there’s a surfeit of care needed
but a deficit available. Which is why we’re so lucky to draw on support from
the aforementioned parents and parents-in-law, as well as dozens of others who
have lent a hand.
If things go to plan I’ll finish my chemo treatment and
enter remission in April, and Melanie will give birth in May. There’s a gap of
just a couple of weeks, and if my treatment runs long or the baby comes early,
we’ll have an awkward overlap. Tough if it happens, but we’ll cope. Also tough
will be the few months beforehand, when the advanced state of Mel’s pregnancy might
leave her exhausted, while the cumulative effect of my chemo will drain me of
energy. All while we seek to prepare our house for the new arrival. Oh joy.
A few people have commented that the impending arrival of a
child has given me extra incentive to beat the disease. Maybe. Even without a
child on the way I had a strong will to live. There were too many interesting
things out there to experience to allow me to shuffle into the sunset at 33
without feeling like I’d missed out. The prospect of becoming a parent –
perhaps the most exhilarating things one can possibly experience – has given me
something profound to look forward to.
But now I’m not just responsible for me. There’s a 17-week
old foetus in Melanie’s belly that is depending partly on us to raise it, to
feed it, to protect it and to tell it lame jokes. I have an obligation to be in
this child’s life and help shape its identity. To lose the struggle against my
disease would not just be a personal tragedy but would mean I did not fulfil my
responsibility to another person. That is something I could not bear.
And so we battle on. A few weeks back we reached a
milestone, when the mysterious growth inside Mel’s body grew larger than the
mysterious growth in mine. As the months pass I look forward to seeing Mel’s
expand, kicking playfully against her abdomen, as mine slowly shrinks. And by
the time hers is ready to leave her body, I hope that mine has left my body as
well. I can’t wait for the three of us to stare into the future, happy, healthy
and together.
A few subtle differences between our wedding day and our first anniversary on Monday. |
Comments
good luck, and i hope you graduate in April with excitement! (and if you're at TCH, i might see you wandering around some time).